My glow in the woods is the site Scribbles and Crumbs.  If you don't know about it, go and check it out.  Lexie is an amazing writer.  She has this amazing ability to put into words exactly how I feel.  When I found out that Grayson had CDH, her site helped me understand my grief.  This post was everything to me.  She reminded me that "a diagnosis defines a lot of things, but it does not define love."